Tuesday, August 27, 2013

My Thoughts...One Year Later

Wow! I can't believe how time flies. The past year has gone so quickly. It's hard to think of myself one year ago and think that we are the same person. I think challenges in life change you so much that yes, although I am that same person I feel like I have learned and grown so much that maybe that girl that walked into a German hospital one year ago walked out a different person. Having Berlyn changed me in so many ways for the better. I have learned that even though life throws a few curve balls we can decide how we are going to take them and what our attitude will be. My choice is to love and take care of this little girl to the best of my abilities, and yes she may take longer to do certain things, but I am ok with that.

Often people ask me, "Oh she is one year!! Is she walking?" To which I reply, "No but she will eventually."  Then they usually ask "Is she crawling?" And I say, "Nope not yet, but she will." We don't know when but SHE WILL. That is all that matters. I long for the day that she will look into my face and call me "Mama." She hasn't yet, but SHE WILL. Nick and I will sit in the living room at night and say "Berlyn, this is Mama. Berlyn this is Daddy." I can't wait for the day to hear those words. So I am learning to be patient. It is hard and I wish so badly that I could just show her and she would do it. But it hastn't happened yet. She will do things in her own time. I am so glad that the Lord and Berlyn chose our family to take care of her. We will learn along with her and that is OK.

I finally went back to the hospital where she was born. After the two weeks in the NICU and Avree having a concussion shortly after Berlyn came home. I swore I would never go back again. I didn't even go to my 6 week checkup because I couldn't bear the thought of going back. Our friends little boy is in the same hospital and so we went to visit them this week. Just the smell of the place brought so many emotions back. I thought I would break down but I didn't and I just had this calm feeling that everything is the way it should be and life is GOOD!

I have my bad days of course. The days when I wonder 'is that person staring at her because she is cute, or are they staring because she has Down Syndrome.' Or the days when I think that she is never going to hit her next milestone. Being around babies that are her age or younger and seeing that they are crawling, walking, etc. I catch myself comparing her to them and I shouldn't, but as a mom I think you can't help it. You always want your child to be doing things at the same time as their peers. But I just try to tell myself that I will just get to enjoy each stage a little longer. And I am enjoying her so much. So why not wait a little longer, right!

So...Berlyn is sitting up on her own. She lays on her stomach and will turn in circles to grab at toys. She pushes up and does her 'seal stretch' ( puts her head all the way back almost touching her back) a lot. She will try to scoot on her belly and we are working at kneeling and pushing up at the same time. She doesn't care for this too much. Which is why crawling may be a ways off. She also doesn't like to put much weight on her legs. So we got her a walker for her birthday and she does like the jumperoo. Hopefully that will get her used to putting weight on her legs a bit more. So walking may take a bit longer too.

Avree started school this week. And Kason starts next week. I now have a third grader, and a Kindergartener. Which makes me feel really old! We have also started soccer again and gymnastics will start in a few weeks. So life has gotten crazy, but that's how we like it RIGHT!!

I will have to add pics later! My computer is being so SLOW!!

Friday, April 5, 2013

Our Miracle

A lot has happened since my last post. I feel like I need to update everyone. We went home for the holidays and it was such a wonderful time. We visited family, went to parties, ate at all the wonderful places we had been missing, went to Temple Square to see the lights, visited City Creek Mall, ran into L. Tom Perry, etc. etc. etc. But the most important thing we did over the holiays was visit Primary Childrens Medical Center.


We knew that we wanted to see an Infant Cardiologist while visiting the states. I had researched all of them in Germany and made the appointment to see Dr. Cowley. Berlyn had not had an Echochardiogram since she was in the NICU and we were very curious to see what her heart looked like. I was nervous. Very nervous. We knew that one of the holes in her heart would probably close on it's own, but the doctors here in Germany had said that the other one was so big that it would most likely require surgery. I wasn't looking forward to my tiny baby having open heart surgery, but wanted to know either way. We had a consult and they said we would need to come back for the Echo the next friday. We were going to be staying over at Little America anyway so it all worked out and we headed to Salt Lake to enjoy the lights at Temple Square and eating at Spaghetti Factory with my family. It was such a fun night but the fun was definetley foreshadowed by the tests the next day. We got up early and headed to PCMC with Berlyn. They would have to sedate her for the Echo and so we got her ready. The anethesiologist came in to give her the IV and the sedation drugs pretty quickly. They asked us if we would like to stay with her for the whole thing. Of course I wanted to but as the medicine started working and my baby suddenly went limp in my arms I knew that I was going to have to leave. I wasn't expecting being so emotional through it all but I could not keep my tears in check. We went to the lobby to walk around and wait for the test to be done. I tried to keep my mind occupied, but time couldn't go fast enough. We waited and checked the clock about 500 times. And as soon as the minutes were up we headed back to see Berlyn. She was still sleeping and they wheeled her upstairs into recovery. We waited for the medicine to wear off and finally she started to wake up. She ate pretty quickly after that and they were able to release us. We were sent back downstairs to the waiting room to get the results of the Echo. 


More waiting...I was so nervous and just wanted to know what they had found. Dr. Cowley didn't keep us in suspense too long though. He came into the waiting room only about 15 minutes later. He seemed happy and pulled up a chair right there. I figured the results must be good or he wouldn't be giving us them in the waiting room. He started to talk about Berlyn's heart and his words were kind of a blur until he came to "everything I see leads me to believe that Berlyn's heart is that of  a healthy baby girl. I cannot find ANY holes at all!" I cried tears of joy then. And felt such a relief. We had asked our Heavenly Father for one miracle and we had been given it!! Our little girl would not have to go through surgery and endure any more pains. We had been blessed once again. I felt such appreciation and love for my husband and his insight and preisthood. He had given Berlyn a very heartfelt blessing while she was still only a few days old. He was alone with her one day and just decided that he needed to give her a blessing. He asked that the Lord would heal her heart and if we could just have this one thing. I am so glad that he did. I know that the Lord heard his blessing and helped us because of it. And we now have a beautiful, healthy, baby girl because of it. We are so very blessed. I feel that everyday.

We got to go and tell our families next  which was so fun. They all cried tears of joy as we told them and said that they were so happy for us. It was truly our Christmas miracle!!

 

Wednesday, September 26, 2012

Heart Ache

I have found that blogging is great therapy for me. So I will just give you all a little update on Berlyn. We haven't seen a cardiologist yet but will in the near future. The two holes in her heart are not critical right now but over time will over work her heart. So she will have to have surgery eventually but not until she is a little older. The one hole is small enough that they believe it will close on it's own, but the other is quite a bit bigger. So we will see a cardiologist and hopefully he will be able to tell us.

The last few weeks have been so nice having her home and just being with her all day while the kids are at school. I just hold her and stare at her a lot of the time. I do have my days that are hard. I have a lot of questions about the future. I wonder about her future mostly. I wonder how high functioning she will be? How long it will take her to sit up or walk or be potty trained? I wonder if she will get teased? I wonder if she will have physical problems? I wonder if her heart will be ok?  I wonder if she will date or ever get married? There are so many things that I just don't know right now and I have a hard time dealing with that. I used to feel so in control of my life and what happened and now it's so hard to let go and just know that our Heavenly Father knows and that he will take care of us no matter what. I just need to trust in Him.



We had another visit to the hospital this weekend. Avree fell at her soccer game and was right by the ball when she fell. She got kicked in the head. She was fine right after but when we came home she started to act very strange. She couldn't hold a cup, she was speaking very slowly and slurring her speech and she started to throw up. So Nick took her to the hospital in Trier. I waited at the house and it was all that I could do not to go there. I waited for him to call and he did about an hour and a half later. They admitted her for the night and watched her very closely. So I went to stay with her through the night. It was good to have that time with her. I think that since we had Berlyn both kids have needed some extra attention. So we had a little girls night in the hospital. Although those were not the circumstances I would have liked, it was still good to spend one on one time with Av. She is such a fun little girl and growing up so fast. She is an amazing big sister and always so willing to help with whatever I ask her. As I layed there in the hospital I couln't imagine life without her. I prayed that all would be well. I had a very calm feeling that she would be ok, but I knew that I couldn't take much more stress. I think when it rains it pours sometimes. Life throws us some curve balls and I felt like I had had my fair share for a while! When Av woke up she said she felt really good. I was so relieved. I was so grateful that she felt good and that she would be ok.




All of these things have really made me focus on what is important in this life. My husband and my children are so important to me and I love them so much. I hope that I can be the best wife and mom to them. I know that if I continue to do what is right that the Lord will bless us. And He has already so much in the last nine months!! I am so happy to be here and to have these special people in my life!

Tuesday, August 28, 2012

Ups and Downs


Wow it's been a whirlwind of a week! Seems like so many things can happen in such a short amount of time. We have had good and bad news. After we found out that Berlyn had Down Syndrome we were in shock. But then on top of that we found out that she also had two holes in her heart. Yes this is typical of children with Downs, but the bad news just seemed to be piling on. I know that the Lord wants us to learn and grow from this, but I feel like one person can only take so much. And after this news I was about at my peak. But then as usual I go and see my daughter and I can only feel blessed. Blessed that she is mine. Blessed that she is here and relatively healthy. Blessed that she has an amazing father. Blessed to have two other wonderful children. She makes me want to be a better person. She needs me to carry on. She needs me to be at my best. And I can do that for her!


I feel like I need to thank so many people!
...To anyone who has commented here or on FB- Thank you for your comments. I read all of them and am touched and usually end up in tears after reading. They lift me up when I have had a bad day. You have no idea how much I have needed that over the last few days.
...To our friends. Thank you for taking our kids whenever. For the dinners, the cute outfits for the baby, the calls, and the concern.
...To my little kiddos. I love you more than anything! You also keep me going through all of this because you need a mom. And I love how in every prayer you mention your little sister and ask Heavenly Father to please keep her safe and healthy! You have such faith and teach me to be stronger.
...And to my Nick. Thank you for being so strong through all of this. You never cease to amaze me with your strength. Thank you for all of the late night chats and just being there and letting me cry when I needed it. Thank you for taking the kids swimming or to the park or doing the dishes when I was not feeling so great. All of the small things you do does not go unnoticed. You are such an amazing Dad. Thank you for being my best friend, I love you more than anything!


And for some good news! We will take whatever "Ups" we can get with the "Downs." The docs have told us that we can take Berlyn home by the end of the week. It is better that Christmas! We are all so excited. The kids keep talking about all they can do to help. And Avree wants to choose all of her outfits each day. It is the news that we have needed and our family will finally feel complete!

Friday, August 24, 2012

Berlyn's Story....continued!

Tuesday morning came and we waited and waited to see our baby! Seemed like forever to wait until nine to see her and know how the transfusion went. We went in and hurried to her bedside. She looked so good! I felt a wave of peace as we walked in. Just seeing her calms me so much. Her presence is amazing. We asked the doctors how her night went with the transfusion. They were surprised and said that she didn't need it!! Wahoo. Some good news in all of this. They said she was producing enough red blood cells on her own and thought that if she stayed under the lights that she could do it without the transfusion, although down the road she may need one. Depending on if she produces enough and continues to on her own.


Thursday we finally got to hold her for the first time. It was amazing to just hold her in my arms rather than just touch her hand or face. My arms literally ache to hold her. We go twice a day once in the morning and once in the evening to see her. But it is hard to not have to do all of the things that a normal mom does. I long to just change her diaper or even to get her dressed and bathed in the morning. Such simple things. It is hard to see all of the babies going home from the hospital and wonder when it will be our turn. You envy those parents with their babies all dressed and in their carseat and hope that one day soon it will be you!

So this is how the last few days have went. They put her on the lights then take her off to see if she can maintain on her own. Today (Friday) the doctors were very positive. They said she is maintaining and only half of the lights are on. Other than her Bili levels everything else is looking good. Her heart is strong and healthy and she has no other problems! Avree and Kason finally got to see her through the window today! They got to watch me feed her and see what she looked like without her glasses on! They absolutely loved it.


We love you sweet baby! You are the light of our lives. We can't wait to have you home all of the time!!

Thursday, August 23, 2012

Berlyn's Story

Where to start...where to start. I have had so many people ask about Berlyn and her circumstances for being in the NICU that I thought I would just blog about it and let you all read her story for yourself.

Monday was a beautiful, hot day here in Germany. We had been told by the doctors to be at the hospital between eight and eight thirty for my induction. Avree and Kason had stayed at the Thompson's house Sunday night so that we could just get up and go to the hospital. We were so excited and nervous. We arrived at the hospital around eight thirty and headed for Labor and Delivery. The floor was pretty quiet and that was a good sign, since I was not in active labor we worried that they would send me home if they were full.
We got settled in and Nick went to register me downstairs with the hospital while the doctors decided what method to induce with. They had a few options and weren't sure the best way to go about it. They came in about nine thirty and decided to have me drink "the cocktail".  Or that's what they were calling it. Basically it is a mixture of apricot juice, castor oil and non-alchoholic champagne...ugh. Pretty nasty! It tasted like rotten peaches with oil in it. So they sent us on our way and said to drink "the cocktail" and to come back around eleven or before if I was having any contractions. So we walked a little and played the ipad a little and were basically just killing time. Ugh!! I was having some contractions but nothing that was too painful. Mostly just a tight belly and nothing else. So around eleven we headed back hoping to get things going. Sandra our first midwife came in to monitor the baby and the contractions. I was having contractions but only one that was even big. So the Doctors came back in and were going to send me upstairs to the maternity ward where my room was to see if my body would naturally keep contracting and go into active labor, through the night!! Thank goodness for Nick and his impatience because he stepped right in and just asked them to put me on pitocin. Which was what we really wanted in the first place. The doctor didn't really like it and asked us if we were "very impatient" which we were!! Anyway they hooked me up to the IV and things got going finally. The contractions were pretty regular and I wasn't in hardly any pain! We were watching Despicable Me and around two-thirty my water broke!! All on it's own! That was a first. The midwife, Dauneta who had just came on shift was laughing and kept saying that we were "schwimmen." There was so much water! Everywhere. And each time Berlyn would move there was more! We knew that once my water broke it would go very fast so we asked for them to come and get my epidural in ASAP. The anesthesiologist came very quickly and got me all hooked up. They don't give you continuous medicine through the epidural here it is one syringe at a time, so my first syringe took about ten to fifteen minutes to work and was awesome!! I could relax and felt soo good. By that time I was dialated to a five or six and everything was moving along very smoothly. Maybe a little too smoothly! Ha ha. So about two hours went by and the first syringe started wearing off and I was getting nervous that the pain would be unbearable. So I asked for more medicine because I knew the pushing was coming and did not want to feel it all. The midwife gave me more medicine but not as much this time! As I waited for the medicine to kick in I knew that it wasn't enough! My whole right side was numb and the left side I could feel everything! Soo painful. And Berlyn's face was pushing into my left side also! So I asked again for more medicine but they wanted to check me first because I was feeling a lot of pressure to push. And sure enough it was time!! There was no time for more epidural. Doctor Gunther said to just push through the pain! Ugh!! So push we did!! And it was on! Three pushes and a big fist push on my stomach by Dr. Gunther and our little princess was here!! Berlyn was born at 6:15 p.m. She weighed 6 pounds 7 ounces and was 17 inches long!!

This is where life changed for us in an instant....
It was very quiet in the room. Berlyn was not crying and everything was still. No running around, no chaos. Like my other two births had been. Nick asked if she was ok probably ten times and so did I. And everyone was reassuring us that she was fine, but we knew then something was wrong. The cord had been wrapped around her neck very tight which we didn't know so they cut it quickly and set Berlyn on my chest. I looked at the most beautiful little baby for a few seconds. I noticed she looked very pale and tiny and I was so enthralled with her that I didn't notice what everyone else around me surely knew. Even Nick asked "Does she have something wrong with her." I didn't see anything but this perfect little person that I had been connected to and loved for nine months. The pediatricians came in quickly and she was gone. Pretty soon after that we knew that there must be something wrong or they wouldn't have taken her so quickly upstairs and not let us hold her or see her. They got me all cleaned up and changed into a new bed and wheeled me down the hall to another room. Nick and I were just chatting and wondering what was going on. Then the two midwives and doctor came into our room. The three ladies shuffled in and from the look on their faces I knew something was wrong. In broken English the doctor proceeded to tell me that the pediatricians were "suspecting" that Berlyn had Downs Syndrome. I was in total shock. So many questions went through my head. I felt like I was spinning. You can't prepare yourself for something like that. I could not even talk. I was so bewildered that I had had two ultrasounds every week for pretty much my whole pregnancy and no one had seen this coming. I went through every emotion that there is. From hurt, to anger, to total sadness, and then to joy and back again. The doctors filed out of the room and Nick and I just stared at each other! Our lives had just changed forever. We didn't know what to think. Then Nick was determined that he go and see her. They told us that they were doing tests on her and that we couldn't see her until eight o clock. We were just sitting there in shock. We knew that life would be different. That everything had changed.

It's all a bit fuzzy from here. So many things were happening and numbers being thrown at us. And going from one room to another, topped off by being soo tired from the birth. They took me upstairs in my wheelchair to see her. She was in an isolette with blue lights on for the Bilirubin levels that were too high. She had tiny little sunglasses on and you couldn't see much of her face. Tubes in her head, foot and belly. Whoa! Not what I was expecting. I guess I thought that since her levels were good up until birth that she would not have to have any transfusions. The pediatricians had us sign some permission papers to give her a transfusion because her Bilirubin levels were very high. Basically because of the Anti D in my blood her blood had very few red blood cells and they were not sure if she could produce enough on her own. They wanted to do a blood exchange. Which basically means they exchange her blood for all new blood with lots of red blood cells. So we signed the papers and were told that they were planning on doing the exchange that night. There was nothing else for us to do but wait.

We were exhausted both mentally and physically and headed back to our room in the maternity ward for the night. Now in Germany a maternity ward is not the same as in the states. There are two and sometimes threee women assigned to a room here. Luckily my room had cleared out for the night so it was just Nick and I there. We chatted with our friend Kyle who had brought me a Dr. Pepper and some awesome treats! It was great to have a friend and a hug! They had brought Nick a bed to sleep in and we settled down to try and sleep. It was very hard lying there not knowing how our sweet baby was. Not either of us slept at all and the sounds of babies crying through the night did not help. Long night to say the least. The next morning we waited and were anxious to get to the NICU to see her. We headed down about eight and were promptly told that visiting hours even for parents did not start until nine! Ugh! So we went back to the room and waited. During this time one of the young nurses brought a baby in a bassinet into our room, I thought just for a second that maybe it was my baby! She looked at us both then turned around promptly and left. This brought so many emotions to me all at once. Thoughts raced through my mind. Why couldn't that have been my baby? Why do all of these other women get to have their babies and hold them and I have to sit here and wait? Why does my baby have Downs Syndrome? Why can't she just be healthy? The tears just flowed for a while. No one can understand what you are going through as a mom. My thoughts were overcome with all of this. We talked a little and cried together. Then quickly headed to the NICU at nine.

There she was. The most beautiful baby under her blue lights and all of those thoughts and anger went away. It is the most peaceful feeling to be around her. She brings me so much joy that everything else seems to fade. She is perfect in every way in my eyes. To the world she may look different, but to me she couldn't be more perfect! I am so lucky to be her mom. I get to raise one of the most choice spirits of our Heavenly Father.


Wednesday, February 15, 2012

Wittlich Pig Fest!

The VERY HIGH swings!

One of the great things about living here in Germany are the festivals that each village has! They are almost every weekend in the summer months. Each little place has it's own story about why they have their festival. Usually about having their village saved by a certain animal! Well in this case it is a pig. Ha ha. Wittllich is about 20 minutes from where we live. It's a really cool village. We went to Pig Fest there and had a blast with our friends. There was a lot of great carnival food, crazy rides and of course a pig roast. We grabbed a pig sandwich for dinner and then let the kids ride some rides, we had a slushee, and of course had to buy the gummies. They have everything gummy you can think of! You just shovel it into a bag and pay by the pound! Pretty cool!! Then on the way out as we were leaving we saw what looked like a monument. So we went to see what it was and it turns out it was a piece of the Berlin Wall! I translated what it said on the wall and it was something like "turn wall ends". So I am guessing something like "the wall ends".
The kids on the bus! You can see Av's face a little!
 
Av Riding the Horses! Kason wanted to and chickened out right before they were supposed to get on!
More Rides!
Piece of the Berlin Wall